Thursday, March 25, 2010

Come on... grab your purple!!!

You all know this beautiful baby by now, right?  Emily is our friend Joe & Erica's baby... Be sure to stop HERE to keep updated on Emily's journey...

She has been diagnosed with Infantile Spasms - which is a form of Epilepsy... & tomorrow, Friday, is actually National Epilepsy Day.

Erica & Joe have said that so many people have asked what can they do to help.  They came up with a really neat idea.  They asked that people just wear purple on Friday - the color representing Epilepsy... (Actually, I think the official color is lavender, but hey, purple is purple)

But what Erica wants is for you to take a picture & either post it on  your blog & comment either here or on her blog & she's gonna take all those picture & put them together so when Emily grows up, she can see all the people who love her & support her... & support all those who are like her.. fighting a fight that no one so small should have to fight...

So, you wanna join along?  Come on - purple is HOT right now...

Just be sure to either post a picture of you in your purple on your blog, or just send me or Erica a link to your picture... just click "About me" to get my email address if you'd just rather send it directly!

We're going to punch Seizures - Spasms - Epilpesy - all of it - in the face one day!!! 

9 comments:

  1. Well, I am going to post this on my blog for sure! I am having trouble with my linking abilites so I am going to post the button and encourage others to do the same. Bless her little heart and the hearts of her parents! I am sure it is just horrible to see your baby with all of the tubes, wires and uncertainties. Thanks for sharing and spreading the word!

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  2. you better believe i'll be in purple!! anything i can do to help :)

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  3. Oh Rebecca thank you so much for this! When you posted this you had no idea how rough our morning was and when things calmed down, and by calm I mean she passed out from all the meds, I read this and it made me so thankful that you are my friend and that Emily has you for an aunt!!! Love you

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  4. oh she is adorable! what a great idea! saying a prayer for her sweet little self and her fam :)

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  5. That is such a wonderful idea! I, too, will lift her and her family up in my prayers!

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  6. I posted this on my blog too as well as my Random Dozen. We will be praying for little Emily & her family.

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  7. That's so neat! I'm going to get my girls to do that.

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  8. here's my post!

    http://ohmissyme.blogspot.com/2010/03/show-some-purple.html

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  9. I've got a purple shirt up at my blog! http://whereiwastoday.blogspot.com/2010/03/project-365-week-13.html

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